Quality management system
DREAM registries include prospective clinical and patient-reported data. All data are collected using a web based data management system, designed and hosted by TiH, a spin-off company of one of our founders (the University of Twente). This system gathers data from questionnaires, laboratory results and clinical data in source documents without the need for superfluous procedures. The data can be presented at the individual patient level, hospital level and the population level. With this data we are able to conduct scientific research into the quality, safety and efficiency of the healthcare provided.
At the individual patient level, the data can be used to support the patient pathway. Preceding each visit to the clinic, patients are asked to complete self-reported measures of disease activity and quality of life. To support patients in preparing for their consultations, they have access to their personal online medical record. This includes data on their diagnosis, treatments, treatment outcome, laboratory results and quality of life over time. Data are presented in graphs wherever possible and accompanied by understandable explanations, so that patients are further empowered to actively participate in their treatment.
During consultations comprehensive individual patient data is made available in real-time to the attending physician or nurse, presented in graphs and in relation to that patient's previous measurements and in relation to current and previous treatments. This enables caregivers to make treatment decisions based on a comprehensive overview of the patient's history in terms of comorbidities, treatments, dosages and their effect on clinical parameters and patient-reported outcomes.
At the hospital level, benchmarking allows comparison of individual caregivers or institutions which can start a cycle of improvement through clinical auditing.
Analysis of the population data offers opportunities to examine adherence to guidelines, quality of care and efficient use of means.